CE-ASSIST-DailyLife Resource Core

Services

• The CE-ASSIST-DailyLife (Community Engaged Assessment & Intervention Science & Technology in Daily Life) Resource Core offers an array of services

Create and Sustain Interaction between Community Stakeholders and Project Teams

• Train and educate on community-engaged research principles and best practices for engaging stakeholders
• Identify opportunities and facilitate connections with community-engaged research resources including the Alliance for Research in Chicagoland Communities, Northwestern Primary Care Practice-Based Research Program, and FIRST-DailyLife Community Advisory Board
• Pilot and feasibility study funding

Project Design

• Identify opportunities and methods for soliciting patient and community stakeholder input tailored to user’s project
• Integrate stakeholder input to refine research questions and key study design considerations (e.g., recruitment and retention strategies, intervention comparators, intervention delivery logistics, study measures)
• Engage stakeholders in end user-centered design methods to ensure that projects will fit into the lives of real-world end-users and into existing community care settings
• Assist in budget planning that identifies appropriate costs for incorporating patient and community stakeholder perspectives throughout a project
• Application of knowledge from implementation studies to new “up-stream” research (e.g., project developing a new intervention). For example, knowing about modifications that were needed to fit an evidence-based practice in the end-user’s setting can inform the development of new interventions with an aim of use in the same setting.
• Leveraging Core members’ expertise, integrate methods that improve the health of minorities and underserved communities
• Enable development of equity-focused digital health interventions that expand high quality healthcare access
• Recommend and facilitate design elicitation interviews, co-design workshops, usability testing, and pragmatic pilot trials of new innovations, such as technology-enabled healthcare services
• Develop and optimize implementation science frameworks, strategies, and evaluation plans to understand the critical factors for the uptake of evidence-based practices in real-world settings

Assessment

• With patients and other stakeholders, identify outcomes that matter most to patients
• Identify and review available patient-reported outcome measures of physical, mental, and social health, symptoms, life satisfaction, and function as well as performance-based tests of cognitive, motor, and sensory function; evaluate psychometric properties; develop content tailored to a specific population or aim, prioritizing opportunities for integration of state-of-the-science measures to capitalize on measurement advances
• Ascertain assessment time points and triggers for intervention based on self-report measures (e.g., meaningful change, cut points)
• Identify areas where passive sensors (e.g., GPS, activity) and biosensors can advance study aims
• Select accelerometer most appropriate for study aims that relate to assessment of physical activity, sedentary behavior, and sleep, and for the population to be studied
• Incorporate accelerometer data with sensor data as needed to achieve study aims
• Incorporate critical contextual variables including social determinants of health, e.g., neighborhood deprivation, racial residential segregation, employment, financial and housing stability, food insecurity, neighborhood safety, access to medications and health care, child and elder care, experiences of racial discrimination, and community assets and resources, to achieve study aims and expand understanding of health disparities
• Discern opportunities for advancing measurement science through evaluation of measure performance, utilization or construction of score linking tables, and development of novel analytic plans that integrate passive sensor data with performance tests and self-report (e.g., accelerometer data, gait speed test norms, and self-reported physical function)

Operationalizing Studies and Disseminating Results

CE-ASSIST-DailyLife offers consultation related to:

• Protocols for patient-generated information
• Selection, refinement, and use of digital technology platforms
• Identification of appropriate stakeholders to help in developing materials that disseminate study findings
• Develop approaches to disseminate findings/results in useful ways to community partners
• Within implementation research, development of logic models, optimization of delivery systems, and scale out of interventions for diverse populations
• Consultation on development of project-specific dissemination plans, construction of dissemination products, and connection with dissemination outlets